James was more responsive today.  This morning, his kind nurse brought a new memory-like pillow that seemed more comfortable and cushion booties for his feet.

His brothers Chris and Jeff are visiting and there was a moment when it became obvious that James realized that Chris was standing by the side of his bed. Chris said, "Hey Jim" and James leaned over across the bed with his good right hand and clasped Chris's hand, eyes fluttering open to see Chris. We all gave a little hooray over this recognition. 

My mother and Robert, James's friend since high school days, flew in on a red-eye from California. We are grateful for Robert's love and for the fact that he makes an excellent partner for my mother to navigate through New York City during this blustery almost spring season.  We filled James's NICU room to capacity this morning and did our very best to keep quiet. The Sheehans share a bit of dark humor so there was probably more laughter in the NICU than heard in quite some time.  Needless to say, it is a serious space in the hospital but the joy of the Sheehan brothers was slightly hard to contain, especially with Robert added to the mix.

The team of doctors for James includes specialists in infectious disease, neurology, and cardiology.  The infectious disease team are growing bacteria cultures in the lab from the material taken from James's brain.  They need to find the specific bacteria that caused the infection so that they may narrow the range of treatment with antibiotics.  So far, they have grown one type of bacteria and they should have a definitive identification by tomorrow, in the late afternoon.

The neurological team are monitoring the pressure in the ventricles in James's brain.  They want to confirm that no added pressure is placed on his brain and that there are no further complications from his surgery. There is not a problem with the pressure at the moment. 

Since James was more responsive today, it also means he's experiencing slightly more pain and discomfort. I'm afraid he's a bit of a frisky patient in that he does not like the pain in his head and therefore, must wave his arm in the direction of his head to point it out!  Luckily, we are able to ask him questions and he is able to respond by a squeeze of the hand. We ascertained that he needed a little pain medication today and it was delivered after he "asked." 

He remains intubated which means he has assistance to breath. This tube is also quite uncomfortable but we hope he will be able to breath on his own soon and that it may be removed.

As I have mentioned previously, there is not really a timeline in the NICU.  We move toward little goals and feel relief with more responses from James. He's an excellent toe-wiggler on command.

I want to give a big thank you to the PS34 PTA that was generous in their gifts of food for Imogen and me.  We appreciate the kindness that comes in the form of sustenance and perhaps, a bit of sweetness too!

Love to all those that have commented such wonderful things about James and why we all care for him. 

I truly feel blessed to have the community embrace us during this time.

The Sheehan brothers insisted that I tell everyone that on our walk back from lunch yesterday (Chinese food in the neighborhood of the hospital), as we were walking under a bower of trees, a lovely New York City pigeon planted a poop on my head.  They see it as a sign of good luck.  I'll take it in whatever form it wants to shape itself.

Peace out to you all on this Wednesday night. Imogen wants to show me her ballroom dancing moves learned today in her first class at school.

xoxo,

Jen




Comments

  1. Jennie and Imogen---We were devastated to hear this news of James. Love, strength, and healing thoughts are powering through the ether to you all from Toronto. You're in our hearts... Sophie, Tom & Vera

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  2. His responsiveness today is such an encouraging sign! How beautiful to see him recognize his brother and respond to his pain. (my yoga teacher, when encountering pain, often says, "oh, to be alive today!") Thank you for this wonderful update.

    We know the road ahead is long and very unknown. We are waiting, watching, hoping, and praying with you. We will start bothering you in person as soon as you will let us.

    with love, the Devereauxs

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  3. Thank you Jennie. Sending love I agree with the brothers about the bird poop! Xo Angie and Scott

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  4. Jennie, James, Imogene and family. What great news! He is such a fighter. Thank you for taking the time to write and let us know how James is doing. I keep checking and see this as a very positive step. It’s going to be hard to keep him quiet. With love Melanie

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  5. Dear Jennie and Imogen, I am so sorry to hear of this. I send you much love and hope from West Oakland for his speedy and complete recovery. Paul

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  6. Dear Jen and Imogen,
    Thank you so much for writing this blog. I am in James' painting class at the Y and I have been thinking about him constantly. I am so happy that he is starting to respond to the family. And by the way, my mother always said that it is good luck if a bird poops on you...and my mother was always right.

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  7. Bird poop is always a good sign! Lucky you to be surrounded by so much support and love and laughter. I am sure it was balm to James’ ears and soul. I look forward to hearing about more toe wiggles and hand waves. Love, Deb and Matt

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  8. I absolutely agree about the bird poop being a good sign, this humor in your family generally, so good. What you describe so beautifully -- it is so incredible, so much love is there, and is in so many other places farther from that room for James and for you and Imogen. Colin and I are thinking of you at all times, and sending our energy.

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  9. Today is our Thursday painting class--James' painting class. Every stroke we brush, every color we mix, every drop of cerulean blue will be for James and because of James.

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  10. Jennie, I am so heartened by this good news of James’ responsiveness! Thanks so much for keeping all of us who love James in the loop. If there is anything at all I can do for you or your family please don’t hesitate to call on me. Sending thoughts for complete healing!
    Love, Vicki

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  11. So incredibly happy to read this update - sending all love with a full heart. Glad & grateful for the gathering clan! I don't think my message from yesterday went thru but if there's anything at all I can do, any sort of practical assistance or support, please let me know.
    Anyway, thinking of you all pretty constantly and sending oceans of love and prayer.
    love u
    Fran

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  12. Dear Jen, James, and Imogen,
    So glad to hear the news today.
    I've been thinking about you all the time, James, whatever I do. As so many of your friends have been.
    You guys will get through this.
    Much love, and strength from Lael and Michael

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  13. Bird poop is a great sign- it’s the gods above reminding you to not let the crap weigh you down . I’m so glad to hear Jim is more responsive and is surrounded by his family and friends , such a support system you all have ! So much love in the room , how can one not try their hardest to overcome ? Give Jim a kiss for me , I’m sorry I’m not there with Mommy and Robert, but my heart is there with my spirit. Much love from AZ.

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  14. Dear Jennie, You and James and Imogen are in our thoughts every day and we're sending our very strongest love and healing energy in your direction. Thank you for keeping us updated on James' condition and for sharing these wonderful anecdotes. So happy to hear about toe-wiggling, bird poop and everything else. We're here if there is anything we can do to help in a hands-on way. Love, Marsha, Alan, and Sylvia

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  15. We love you guys! We are thinking about you a lot and sending you positive power energy vibes from Michigan. James, you’re an amazing and kind soul with the strength of an Olympian. You will power through this. I know you will.

    The pigeon poop is a great sign! As are the toe wiggles and arm waves. So so glad you are surrounded by a loving and supportive community. Much love, Heidi & Michael

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